The life that we’ve built together is beautiful pandemonium, but I wouldn’t have it any other way. We have two “normal” older boys (Kevin and Anthony) and two children (Ethan and Annika) affected by a severe bleeding disorder called Factor VII Deficiency. Our first “bleeder” (Ethan) passed away in 2008 due to a spontaneous brain hemorrhage. He was one week old. Ethan’s diagnosis caught us by surprise, but his untimely passing has helped Niki thrive despite her condition. Our fifth cub Anjali (pronounced Awn-jah-Lee) is a carrier and was born in January 2011. I am currently pregnant with cub number SIX. Baby Blaise is due January 2013.
Life has been tough, but I don’t think our struggles are any worse than anyone else out there. We learn from our experiences and I’m happy to say that our den is proud to bare the scars that life has given us.
Welcome to the Lions Den!