I read your story about your son Ethan. My heart goes out to you. I can't imagine how hard it's been. All your children are beautiful! I have a 6 month old named Julian. He has Hemophilia Type B Severe. I just found out 3 weeks ago so I've been reading and learning a lot about this disease.
Thank you for your kind words and very sweet compliments! :) I remember how scary it was at first, but having a child with special needs has been the most rewarding experience of my life. I'm sure your son Julian is flourishing especially with a Mama like you -- research and education is always good. Take care of yourself and if you ever need to vent or chat, I'm just an e-mail away. :)
Are you attending the Hemophilia walk in LA this October? If so look for me! My name is Valinda and my team is TEAM JULIAN! By the way love the music on your blog.Valindav_linarez@yahoo.com
Nice to "meet you Valinda". Glad you like the music. :) Unfortunately, I live in the SF Bay Area so I won't be able to attend the walk in LA. Our chapter just had its first walk this past April and I had a lot of fun being Team Captain. Good luck to you and your team!
That's great! Thanks! :)